I have so much to do the week of PURPLE DAY. Today I’m going to the local library, which I am totally stoked about, to read a book about Epilepsy to the kids. Then I’m going to my friend Tyler’s house to hang out. I still get nervous about spending the night places so I don’t do that.
To be me is kinda awesome but yet at the same time scary! My family tells me all the time how strong I am to deal with a seizure disorder but I don’t always feel that way. It has been 36 days since I went off medicine and I know I should be excited that I am still seizure free but I think about it all the time. When will it happen? How will it feel again? Will my family be scared?
My family is really awesome though. They all have roles when I have a seizure. They all talk to me because I can hear really clearly. My mom is in the front and my dad is in the back (because it is really hard for him to look at my face when I have a seizure – it really makes him sad, he says). My sister Ella runs around everywhere like a gopher. She gets towels because I get sick and then gets water. She is cool! I always talk to my sister Gracie later on the phone because she is at college.
My friends are the best. When I had to wear a helmet to protect my head, no one made fun of me. They actually thought it was cool. They always threw me the pass at recess because who wanted to hit the only kid wearing a helmet? Score for me! Everybody took turns being my buddy because the school had someone go to the bathroom with me (kinda freaky) but my friends have been there the whole time.
My class got to hear me on the radio the other day when I was interviewed by a local station about Purple Day. I am hoping all this attention will get me plenty of dates later! My school is so pumped for Purple Day and I designed a shirt with my sister Gracie for all of us. It has the picture from the Purple Day Poster on it. I also went to my first movie with Ella. It was fun! I think she will tell you all about it in her blog. If there is anything I want kids like me to know, it’s that you can do anything you want. I still play baseball, basketball, swim, and play guitar.
Well, I need to get to the library, so gotta go ! Wish me luck!
Purple Day is March 26th – Wear your purple to support epilepsy awareness globally. Visit www.purpleday.org.