Your Baby’s NICU Care Team
    August 15, 2012
    Your Baby’s NICU Care Team

    Today’s post offers parents some information on who may be part of their baby’s care team in the NICU – and what, in general, their roles may be. There may be many different members on your baby…

    The Different Levels of NICUs
    August 14, 2012
    The Different Levels of NICUs

    A first step to understanding the NICU is learning the lay of the land. Be patient with yourself – you are getting adjusted to a strange and foreign terrain - but it is important to know where and w…

    If Your Baby Is in The NICU
    August 13, 2012
    If Your Baby Is in The NICU

    Every expectant mother eagerly awaits the day when she will finally hold her baby in her arms. But for mothers of premature or very sick newborns – that moment is postponed as their baby is whisked …

    Parenting a Premie -- What You Can Do In The NICU
    August 2, 2010
    Parenting a Premie — What You Can Do In The NICU

    It can be a challenging time in many ways to have your baby placed in the NICU. It wasn't the new beginning you hoped for. Here are a few things you can do to that can make a difference: (more……

    Being Different is Good
    March 4, 2010
    Being Different is Good

    If you can't hide it, embrace it. From fairly early on after being diagnosed with Arthritis, my joints started to change. I used to get embarrassed at people looking at my hands - they look like an 80…

    Disability Awareness and Tolerance
    March 13, 2009
    Disability Awareness and Tolerance

    As my family prepares for another weekend, I have to face the inevitable decision about "What are we going to do?"  This is a never-ending question from my children.  My two children who are not dis…

    Can We Build Relationships Outside the World of Disability?
    March 12, 2009
    Can We Build Relationships Outside the World of Disability?

    I have recently reconnected with some old friends from high school and college thanks to the modern miracle of the Internet. It's always a thrill to get reacquainted with people who I shared so many i…

    Appreciating the Amazing Siblings of Disabled Children
    March 10, 2009
    Appreciating the Amazing Siblings of Disabled Children

    I was talking to a friend of mine today who is raising two beautiful girls, one who is a young teenager and another who is a "tweener" with autism. We began one of our many conversations about our liv…

    Pride in the Accomplishments of My Disabled Daughter
    March 9, 2009
    Pride in the Accomplishments of My Disabled Daughter

    The great joy of being a parent is celebrating your children's success. Every developmental milestone reached by our babies is carefully recorded in scrapbooks. We save report cards, trophies, ribbons…

    Educating Children & Teens with CFS: The Show Must Go On
    October 24, 2008
    Educating Children & Teens with CFS: The Show Must Go On

    Children and teens with CFS have many of the same issues as other children with chronic illnesses, confounded by the fact that they have an illness which is poorly understood, often misunderstood, and…

    The Ponseti Method for Club Foot Treatment
    September 25, 2006
    The Ponseti Method for Club Foot Treatment

    I recently received a wonderful letter from the mother of a 10-month-old boy who had been born with a left clubfoot. She wanted to be sure I would let parents everywhere know about a gentle, effective…

    Skin to Skin Care for Preterm Babies
    November 11, 2005
    Skin to Skin Care for Preterm Babies

    When a baby is admitted to a neonatal intensive care unit (NICU), life can be quite stressful for the baby - and for the parents. Mothers often report that being separated from their babies, especiall…