Hello, my 8-year-old daughter has been suffering from upper abdominal pain for 3 months. She says the pain is right above the navel and to the right about an inch. What worries me is that she also has a bulge where the pain is to the right of her navel. We have had an ultrasound and 2 x-rays. The 2nd x-ray was done by a gastroenterologist and he found that she was full of stool. She has been on a cleaning regimen and has been on Miralax for 3 weeks. The pain is still there not as bad except when she runs or jumps. She is an active little girl and its very frustrating to her to be giving up the things she loves to do. She was in cheerleading/gymnastics class when this pain first began. She has since had to give up gymnastics as she wasn’t able to perform because it was to painful. Is there something else the doctors should be looking for or is it possible that there is something that for some reason did not show up on the ultrasound? I would appreciate any information you could give me. Her pediatrician says this may be something she will just have to learn to live with. I feel that more tests should be done. Should I keep pushing for more?
Dr. Greene’s Answer:
Having the belly fill up with stool is more common than most people think. The scenario is so common that I created my own name for the downward spiral that leads to it. I call it the “D3 cycle” (discomfort, dread, delay).
Children can enter the D3 cycle at any point. Sometimes it begins with an uncomfortable experience passing a hard stool created by a change in diet or a brief illness. Sometimes the starting point is simply the fear of sitting over the gaping hole in the potty to poop. Sometimes children are engaged in playing and choose to ignore the urge to poop, holding the stool in just to delay interrupting a vitally important game.
Whatever the starting point, they end up having a painful experience. When the next urge arrives, the child decides to delay going to the bathroom in order to avert what happened last time. The longer she delays, the firmer the next stool becomes. When she finally does poop, the event is even more uncomfortable-confirming her fears. What she dreaded was true!
She vividly learns from this experiment, but it’s the wrong lesson. So next time she is even more determined to hold in the stool. Discomfort leads to dread; dread leads to delay; delay leads to discomfort. The rectum stretches internally so that more stool can be held, and soon urges to defecate are not often felt. The D3 cycle becomes a powerful trap.
But this trap can be undone. Kids should not have to learn to live backed up with stool.
You said that she has been on a program to reverse this for 3 weeks. That sounds like the right place to begin. It can take a while to get the bowels regular. Once kids are having daily soft stools, it takes another 2 weeks for the intestines to shrink back to normal.
Cramping pain during this process is not unusual. If the pain persists after the stool problem is resolved, a long list of other possible causes should be considered. Food intolerances, celiac disease, inflammatory bowel disease, parasites, or other infections could cause it-to name a few possibilities. Further workup may be indicated to find out what else is going on. Children with these conditions deserve to have them identified and treated.