When my wife told me we were asked to be guest bloggers on Dr. Greene’s site I was very excited. Any time my family has a chance to talk about epilepsy we are more than willing.
My 11-year-old son Ethan was diagnosed with Epilepsy in March of 2007. At the time of his diagnosis it was a very frightening time due to the fact we really knew nothing about this disorder. I felt like it was a death sentence for him, not knowing what his future would hold. The only exposure to epilepsy I’d had was with two classmates who both had the disorder. The only thing I knew was that sometimes they would have an episode called a seizure.
I witnessed one of my friends having a seizure and I can tell you now that the wrong things were done for him. That is the biggest reason I like to talk to people about epilepsy. Knowledge is the key thing people need to have when dealing with people with seizures. The more we read and researched about the type of Ethan’s epilepsy, the more we realized that things were not that bad. The doctors can tell you it will be ok, but until you read and see it for yourself there is always that doubt.
I know for me personally, I have learned so much by reading many blogs and joining lots of forums. Parents and patients alike can learn so much from each other.
Keeping a diary that lists every seizure is also very important. With Ethan’s seizures, we noticed his seem to be cyclical. All of his, but one, happened in the months of August-September and December-January. Ironically, Ethan’s very first seizure was on March 26th, the same date as Purple Day all across the world.
Every person is different, so there is no clear cut case when it comes to epilepsy. We have tried vitamins and altering his diet. We had Ethan tested for possible allergies as well.
Currently he takes an all natural vitamin B, all natural omega fish oil and aloe vera juice. He does not consume anything with aspartame or other artificial sweeteners. We try to limit his intake of artificial colors and flavorings as well. To this point it seems to be working.
Ethan has been seizure free since January 17th, 2009 and he was recently taken off his medication. We are keeping our fingers crossed that he will be seizure free for life. I hate that there is still so much misinformation about Epilepsy. It is great that there are things out there like Purple Day to get people talking.
As for right now, it was so exciting to watch Ethan play his first season of basketball and I know he can’t wait for baseball season. I volunteer to coach the team every year and it brings us all together even more. Ethan loves to catch and plays first base too! Ella is the dug-out mom—all of Ethan’s friends have crushes on her and listen to everything she says (not!), and Gracie keeps book for the team (she gets her organizational skills from me, not her mom!). As for my wife, she is definitely a bleacher coach—so annoying—but I couldn’t do it without her. Another trying summer at our house for sure!
Purple Day is March 26th – Wear your purple to support epilepsy awareness globally. Visit www.purpleday.org.