Our Family Today

Part Five of a Five-Post Series about one woman’s experiences with her son who has autism.

For the past four days I’ve shared my stories and tips for helping your child with autism start a path to recovery. Now cut back to our little family 10 months after the initial diagnosis. I still don’t have all the answers nor do I claim to know all the facets of this disease since it seems to just get bigger every day. I am here today to tell our story because we have had so many special people in our life touch the process, so we in turn want to pay it forward and help others trying to figure out their puzzle pieces.

I know for as much heartache as the kids and I have faced in life, we have also been blessed that our struggle with autism pales in comparison to other families. We are also lucky to live in a city that has so many resources and so many people who want to help.

So where are we today? The twins just turned 4, and Tommy is well on the way to recovery and making strides all the time. He has come so far that his teachers, therapists, and I are often stunned by some of his milestones. There are still struggles we are working on: his speech, fine motor skills, and confidence in social circles. But everything is on track and our goal is within our reach.

I remember when I met with Tommy’s developmental psychologist to hear the diagnosis all those months back, and she asked me what dream I had for Tommy. “To see two backpacks going off to kindergarten, together side by side.” I see that image in my head every day and I believe it more than ever.

Recently, we were at another birthday party, and I was sitting on a bench watching my boys roll a hula hoop down a hill together. At one point they walked up the hill together holding hands: a miracle in itself. At the top Mikey proudly says to me, “Momma, I am helping Tommy.” Tommy smiles, looks me in the eye, and says, “Momma, Mikey is helping me.” They both laugh and look at each other like all brothers do and went off together to start climbing the tree stumps.

I sat there with tears in my eyes and realized in that moment that we were winning the fight. Tommy is going to be just fine. It was the first time since I had lost my husband that as a family we had found such peace. It was a moment captured and one that will forever be etched in my heart because it emulated all the goodness of life and the goodness to come.

Never lose hope…

5
 
 

July 4, 2008
Note: This Perspectives Blog post is written by a Guest Blogger of DrGreene.com and is provided in order to offer a variety of thoughtful points of view. The opinions expressed on this Perspectives Blog post do not reflect the opinions of Dr. Greene or DrGreene.com. As such, Dr. Greene and DrGreene.com are not responsible for the accuracy of the information supplied. This post is used under Creative Commons License CC BY-ND 3.0.
 
  • Allowed HTML tags: <em> <strong> <cite> <ul> <ol> <li> <dl> <dt> <dd>

More information about formatting options

CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
Image CAPTCHA
Enter the characters shown in the image.

Comments

Anonymous's picture

Fast forward – Kelly, it’s

Fast forward – Kelly, it’s like a time warp reading your account so I thought you might like to hear about ours. Tommy sounds similar to our own son (now 28) and we had to move to the city to get to the resources, but it payed off. Slow to walk, talk, and just about every thing our son made slow but steady limited progress during his younger years. I admit we caught a break at about puberty with a personality change in which he ‘grew out’ of his autism somewhat. At 28 he holds down a job in a sheltered workshop (government funded) where he can do simple tasks. He has a few friends (sort of) even has a social life (sort of). He is still of course autistic, that won’t change, but he’s a good kid, and most importantly he enjoys life.
Anonymous's picture

Kelly thank you for sharing

Kelly thank you for sharing your stories about life as a women, as a mom, as a parent and as an advocate for your sons - especially Tommy. I think you made some very important statements about doing your research, organizing your goals and never taking no for an answer....always question authority, that is what I say! As an Aunt of a two nieces with Autism I hear about the struggles my sister in law goes through with her girls every day...she is a fighter and has been able to challenge her local school system to get one of her girls into the best school possible. Things can be done if you set your mind to it and as you said, believe in your instincts to get the best help possible. I am proud of your determination!!!
Anonymous's picture

Thank you Lisa for your

Thank you Lisa for your continued support and your efforts to get the message on Autism out there and that in fact the moto that "One Child Is Too Many"...it is a statement that never leaves my mind. You are inspirtational in your effort to give hope to families....you gave not only hope to mine but the resources I needed to begin our journey.
Anonymous's picture

So proud of you Kelly (and of

So proud of you Kelly (and of course Tommy & Mikey.) You are an inspiration in finding the "light" in the absolute darkness of autism and the loss of a loved one. We are so proud of you. Keep finding the light -- Your TACA friends & Lisa A Jeffs mom
Anonymous's picture

Kelly, Thank you so much for

Kelly, Thank you so much for sharing your moving story with us. Your example of love and dedication is an example to us all. Your encouragement to "never lose hope" will ring out to many, many parents around the world who are struggling. Your willingness to dare to have a vision of two backpacks going off to kindergarten will give others the strength to dream. From the bottom of my heart, thank you! C~