Guest Blogger

e-Patient Dave

e-Patient Dave

Healthcare blogger "e-Patient Dave" deBronkart works in high-tech marketing in the Boston area. His interest in healthcare ramped up rapidly in January 2007 when a routine shoulder x ray revealed kidney cancer that had spread throughout both lungs, with median survival time 24 weeks. "I learned a lot, fast," he says; today his tumors have shrunk 92%, and some have disappeared completely. He is well.

While sick, Dave used every resource he could get his hands on: peer groups, superb doctors (as referred by his peer group), web sites, online radiology and lab reports, digital scan images, plus an online family support site, CaringBridge. Before becoming sick he’d been a frequent commenter on his hospital’s CEO’s blog, Running A Hospital, under the name "Patient Dave"; now he has his own blog, The New Life of e-Patient Dave, where he writes about what he’s doing with his "free replay on the game of life."

Largely, that now includes being active in the "e-patient" movement: e-patients are empowered, engaged, equipped and enabled. He’s a frequent author on the e-Patient Scholars blog, has been interviewed by the Associated Press and CNN, and is patient advisor to PCPCC (the Patient Centered Primary Care Collaborative), an employer initiative led by IBM, working to improve healthcare efficiency, outcomes, and cost.

He is unabashedly not shy in his opinions about what works and what doesn’t, and particularly about what the medical professionals forgot to tell us. :)

In this series, he’ll present the things he wishes someone had told HIM when he first heard he had cancer.

Website:

Blog Posts by e-Patient Dave

  • About the Renal Tumor Program at my hospital

    About the Renal Tumor Program at my hospital

    As some of you know, a while ago my oncologist and surgeon, David McDermott and Drew Wagner, asked if I’d be willing to be videotaped talking about what I think about the Renal Tumor program they offer.

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  • Marshalling your resources, and a parting thought

    Marshalling your resources, and a parting thought

    When you’re facing a harsh disease, use every tool at your disposal. Cancer brings a hefty load of communication. Set up a support community

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  • The importance of your attitude and feelings

    The importance of your attitude and feelings

    A positive attitude is good for your immune system. One nurse in my ACOR peer group wrote, “Patients who are engaged in their care and actively seek out knowledge and the best treatments automatically put themselves above the median.” If you’re looking for every way to improve your odds, think about that.

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  • Understanding the statistics you read

    Understanding the statistics you read

    Statistical analysis is a vital part of good medical research. But it’s equally vital that patients and caregivers not get misleading impressions from the numbers they read.

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  • Cancer is no longer a death sentence

    Cancer is no longer a death sentence

    I’d heard a lot about cancer in the news, and I’d known a few people who had it. But when it hit me, the only question that mattered was, am I going to die?

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  • We can easily fix the shoulder, but...

    We can easily fix the shoulder, but…

    After a simple shoulder x-ray on January 2, 2007, I learned out of nowhere that something else had shown up in my lung. Ten days later we knew what it was: Stage IV kidney cancer that had spread throughout both lungs.

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