Question regarding 13 month old's swollen nlymph nodes, enlarged heart and etc.

Hello. My son has encountered health issues since birth. After delivering him by cesarean (it took them a long time to suction him while his head was out. He had gotten stuck by the shoulders and after they got him out, they suctioned him (I think that this is an issue, could you please correct me if I am wrong on this). With both of us being taken to recovery, a nurse had to resuscitate him by suctioning because he had a significant amount of fluid on his lungs (after already being thoroughly suctioned after delivery) she said he could die. The following day he had increasing signs of jaundice and was diagnosed with jaundice and for this he received photo-therapy. He was allowed to go home with me (no photo therapy @ home) but his bilirubin level had only slightly decreased. He was diagnosed with severe reflux at 2/12- 3 months and in addition to this he has serious food allergies and was allergic to his formulas (several switches were made before putting him on a hypoallergenic formula (Elecare) ). He had a severe choking episode at about three months; he had just fallen asleep in my arms only to awake with breathing difficulties (he gasped and choked) not seeing this before, we went by ambulance to the ER. There they performed a chest x-ray and found that he had an enlarged heart with fluid around it (it was un-explained as to why, but they speculated that it could have been due to an infection of some sort). The pediatric cardiologist told me that he doesn’t have to be seen again ( I have taken him to emergency about three times regarding the choking episodes and have attempted to help them through diagnosis by contacting a radiologist and because of this they think that I am crazy, when all I am trying to do is be a good mother and I believe this is why he said this) In addition to the above he has had some issues with his breathing (apnea but it was not treated, I was told only to monitor it). He also would experience and still does experience muscle twitches and jerks as well as head nods and in most cases his eyes will slightly open and the head nods are coupled with this (they diagnosed him with benign infant myocolonas) he also does something that could be nothing but I would like to ask about it anyway: his eyes open slightly (usually the right one) he begins laughing and his stomach begins to rapidly jerk (this only happens while he is asleep). He constantly grabs at front of his head and at the top of his head (he is off of reflux meds, because there are little signs of reflux). In addition to all of the additions above, he has swollen lymph nodes in his head and neck that have increased in size (they started in back of neck but have now increased in size and in population appearing behind the ears, the sides of neck, and in the head area). It was speculated that it was due to cradle cap, but that is long gone and I was told the nodes should be too. His CBC came back normal but I know that this doesn’t pinpoint everything. He has had a fever for about a week that goes up but goes down slightly when Tylenol is given (never goes down past 100.4). Throughout all of this he has still managed to smile. Nobody has been able to pinpoint what is going on. Call it mother’s intuition, but I feel that something isn’t right.
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Comments

missjecoleman, it sounds like

missjecoleman, it sounds like you've been through quite a lot in the last 13 months.

Most recently, when a young child has a fever above 100.4 for more than 5 days without a clear explanation, it's important to continue to investigate why. There are many possible reasons for prolonged fever, including unusual ones like Kawasaki disease (http://www.drgreene.com/qa/kawasaki-disease-defined).

Depending on the nature of swollen lymph nodes, they may be an important clue. Here is an article I wrote about what lymph node findings prompt further work-up (and when), and what lymph node findings are reassuring (http://www.drgreene.com/qa/kawasaki-disease-defined). Noticeable lymph nodes in children, larger than previously noted, is often a good sign that the body is working well. But not always.

My best to you and your son.